BetterHelp’s Betrayal: How They Sold Your Most Sensitive Data For Profit
A Calculated Deception From Day One
BetterHelp built its empire on a foundation of trust. As users navigated its sign-up process, they were met with constant reassurances. Banners promised that information was “anonymous” and would remain “private between you and your counselor.” For especially vulnerable users—those seeking help through its specialized sites like Pride Counseling (LGBTQ community), Faithful Counseling (Christian faith), and Teen Counseling—the company was even more explicit. A prominent, unavoidable message declared email addresses would be “kept strictly private” and “never shared, sold or disclosed to anyone.”
These were calculated lies. While users filled out detailed questionnaires about their depression, suicidal thoughts, and medication history, BetterHelp was packaging that very information for sale. The FTC complaint reveals this was a core part of their business model. The links to the actual privacy policy, which contained vague contradictions, were buried in small, low-contrast text at the bottom of the page, a deliberate design choice to discourage anyone from reading the fine print.
The Betrayal That Fueled an Ad Machine
The operational details of this betrayal are staggering in their carelessness and cynicism. According to the FTC, in 2017, BetterHelp delegated most decision-making over its Facebook advertising to a “Junior Marketing Analyst” who was a recent college graduate with no prior marketing experience and little training in safeguarding health information. This analyst was given “carte blanche” to decide which user health data to upload to Facebook.
This led to the disclosure of intimate details on an industrial scale. For example, when a user answered “yes” to the intake question “Have you been in counseling or therapy before?”, BetterHelp coded this event internally as “AddToWishlist.” The Junior Marketing Analyst then explicitly told a Facebook employee that this code meant the “user completes questionnaire marking they have been in therapy before.” This act alone exposed the prior therapy history of over 1.5 million visitors and users directly to the social media giant.
This practice was not an isolated incident. BetterHelp weaponized user data to optimize its ad campaigns, bringing in tens of thousands of new paying customers and millions of dollars. They handed over user data to Facebook, Snapchat, Pinterest, and Criteo, and according to the FTC, failed to contractually limit how these third parties could use it. Facebook’s terms even permitted them to use the data for their own “research and development purposes.” BetterHelp knew exactly what it was doing. The company knew its users wanted privacy; it just valued profit more.
Legal Receipts: The FTC’s Findings
The Federal Trade Commission’s complaint (Docket No. C-4796) lays out the case in painstaking detail. These are not allegations from disgruntled users; they are official findings from a federal investigation. Below are direct quotes from the complaint that expose the depth of the misconduct.
“In October 2017: Respondent uploaded the email addresses of all their current and former Users—nearly 2 million in total—to Facebook, targeting them all with advertisements to refer their Facebook friends to the Service.”
“Following the February 2020 publication of news reports… numerous Users contacted Respondent and voiced their anger… Respondent scripted the following false responses… ‘At BetterHelp, we are fully committed to protecting data and will not pass any P[ersonally] I[dentifiable] I[nformation] and/or P[rotected] H[ealth] I[nformation] to external entities including our third party partners.'”
Furthermore, BetterHelp displayed a “HIPAA” seal on its websites for years, implying it met federal health privacy standards. The FTC found this to be a lie.
“no government agency or other third party reviewed Respondent’s information practices for compliance with HIPAA, let alone determined that the practices met the requirements of HIPAA.”
The Scale of the Violation: By The Numbers
The Fallout: Broken Trust and Corporate Negligence
Public Health Crisis
The core of therapy is confidentiality. BetterHelp’s business practices obliterate this principle. By turning therapy sessions and mental health histories into data points for ad targeting, they create a chilling effect. People who need help will now hesitate, wondering if their deepest vulnerabilities will be sold to the highest bidder. The FTC notes that the disclosure of this information is likely to cause “stigma, embarrassment, and/or emotional distress” and could even affect a person’s ability to get a job, housing, or insurance.
Economic Inequality
This is also a story of economic exploitation. Users paid a premium, between $60 to $90 per week, for a service they believed was private. The FTC argues that this price was inflated; consumers paid more because of the “deceptive privacy assurances.” Had they known the truth, the service would have been worth less. BetterHelp extracted wealth from its users not just by providing therapy, but by selling a promise of privacy it never intended to keep.
Who Is Responsible and What Can We Do?
Accountability must be directed at the roles and systems that allowed this to happen. While the FTC has taken action, ongoing vigilance is critical.
Corporate Roles to Watch
- Senior Marketing Analyst: The title of the “Junior Marketing Analyst” who was promoted after overseeing these practices.
- Head of Marketing: According to the FTC, this individual did not regularly review the company’s privacy policy.
- Senior BetterHelp Employees: Multiple senior employees are documented as having given false statements to partners and insurance companies about data sharing practices.
Regulatory Watchlist
- Federal Trade Commission (FTC): The agency responsible for this complaint. Their actions in Docket No. C-4796 are a starting point, not an end.
The Resistance
This case is a brutal reminder that for-profit healthcare models often see patients as data sets to be monetized. Support non-profit, community-based mental health services. Advocate for stronger federal privacy laws that have real teeth. We must build and rely on systems of mutual aid and care that exist outside the corporate surveillance machine. Question every promise of privacy, and demand proof. Your well-being depends on it.

The FTC has a press release about Better Help customers receiving money from this: https://www.ftc.gov/news-events/news/press-releases/2024/05/betterhelp-customers-will-begin-receiving-notices-about-refunds-related-2023-privacy-settlement-ftc
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